Journal of Intellectual Disability Research volume 49 part 10 pp 794 – 798 october 2005 Blackwell Science, LtdOxford, UKJIRJournal of Intellectual Disability Research0964-2633Blackwell Publishing Ltd, 2005 2005 49 10794798 Original Article Family quality of lifeM. A. Verdugo et al.
Abstract Introduction Background Assessing the quality of life (QOL) for Family assessment instruments have focused on vari-families that include a person with a disability have ables such as stress and coping strategies, parenting, recently become a major emphasis in cross-cultural home environment, marital relationship or family QOL studies. The present study examined the needs. At best, the instruments to date have evaluated reliability and validity of the Family Quality of Life family satisfaction with the care services provided to Survey (FQOL) on a Spanish sample. the person with disability, but they have not analysed Method and results The sample comprised 385 fam- family quality of life (QOL) from a holistic perspec-ilies who were administered the FQOL in Cali, tive (Bailey et al. 1998 ; Browne & Bramster 1998 ; Columbia. The FQOL showed adequate temporal Ireys & Perry 1999 ; Rubio et al. 1999 ). stability ( r = 0 . 68 on Importance and r = 0 . 78 on Sat- Over the last decade it has been suggested that the isfaction) and excellent internal consistency: Cron- study of families with children with disabilities should bach’s alpha of 0 . 96 for Importance and 0 . 95 for modify its psychopathological approach and focus on Satisfaction.The conﬁrmatory factor analysis yielded the family assets to improve its potentials and capa-high ﬁt indices, thus conﬁrming that the factor struc- bilities (Turnbull et al. 1999 ; Wehman 2000 ; ture of the FQOL as adapted for Spanish people Turnbull & Turnbull 2001 ). The whole family is seen ﬁtted the ﬁve-factor model proposed by the survey’s as a support unit (Schalock & Verdugo 2002 ) that authors. collaborates with service providers and other families. Conclusions The study provides a valid instrument The aim is not to ‘treat’ the family as the psychother-for the research of the QOL of those families that apeutic object but to meet their speciﬁc needs and have a child with a disability within Spanish-speaking expectations. community. The Beach Center on Families and Disability at Keywords conﬁrmatory factor analysis, family the University of Kansas has proposed a multidimen-quality of life, intellectual disability, test adaptation sional model of QOL that includes domains and indi-cators focused on the person and the family (Park et al. 2003 ; Poston et al. 2003 ). Family QOL is mea-sured by means of the Family Quality of Life Survey Correspondence: Miguel A. Verdugo PhD, INICO, Universidad de (FQOL), a tool that combines methodological plu-Salamanca, 37005 Salamanca, Spain (e-mail: email@example.com). ralism (i.e. the integration of quantitative and quali-© 2005 Blackwell Publishing Ltd
Spanish adaptation and validation of the Family Quality of Life Survey M. A. Verdugo, 1 L. Córdoba 2 & J. Gómez 3 1 INICO, University of Salamanca, Salamanca, Spain 2 University Javeriana of Cali, Cali, Columbia 3 University of Barcelona, Barcelona, Spain